SNPedia is pleased to have contributed "Self Explorimentation" to the What ELSI is New series -- especially during the moment when it is generating such interesting blogosphere traffic about access to genomic data. Of course, Genomics Law Report has this well covered, but this is a topic close to my own heart.
As suggested by Anne Wojcicki of 23andMe and Eric Topol M.D. -- SNPedia is here for you. Whether you get your data from a DTC, Kaiser, or the melting curve analyzer in your garage, we can help you to understand your data, and you can help us.
People without their data have little interest in SNPedia. Expanding this access helps SNPedia become a better resource. For these reasons, I might be too inclined to rush towards this (seemingly) inevitable future. I'm grateful that Daniel, Anne and others are raising this issue. But I can understand why Kaiser might feel that releasing information compromises their original study design. Mostly I'm excited by a future where the next study of this sort will need to consider sharing data with patients.
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